The Friends of Sammy-Joe Foundation

The Friends of Sammy-Joe Foundation - Trichothiodystrophy, Xeroderma ...

Trichothiodystrophy (TTD) is a rare genetic disorder that involves the production of abnormal brittle hair, icthyosis, and physical and developmental disorders. It can also involve ataxia, stunted growth, and skin sensitivity to light and UV rays. TTD is a seriously disabling disorder with a severe skin affliction and serious developmental ...

PDF The Friends of Sammy-Joe Foundation

The Friends of Sammy-Joe Foundation April 12th The Launching Event . 2008 April 24 th 2008 Welcome everyone to our first official Newsletter . We have had an exciting three months . The Launching of The Friends of Sammy-Joe Foundation took place at the Turf Club on April the 12th , it was a huge success . Thank you to

PDF The Friends of Sammy-Joes Newsletter

THE FRIENDS OF SAMMY-JOE FOUNDATION The Trichothiodystrophy, Xerodermapigmentosum, Cockaynes syndrome Trust Fund ABN 33 143 598 689 WE ARE A CHARITABLE TRUST AND WE DO HAVE DGR STATUS Please call MARIA 9305 61 82 OR HEIDI 0408 033 757 E W E A R E O N T H E W B L O O K U S U P A T h t t p : / / w w ...

PDF All personal information collected from you is required to ensure that ...

The Friends of Sammy-Joe Foundation Grant Application Form All personal information collected from you is required to ensure that you ... 0407 558 151 Please note the foundation will endeavour to meet all reasonable requests that are made, however we are a charitable organisation and at time our funds are limited.